Friday, July 21, 2006

Appointment with...

Dr Goldman went well today. I told him I was not going to complete my sct and he was fine with my decision. He plans to follow up with my serum free light results monthly and doesn't plan a bone marrow biopsy at this time. I was happy with his plan. I won't know my lab results until Monday, I will post them as soon as I get them. Hopefully my kidneys are continuing to improve. I couldn't get an appoinment with the surgeon until Aug. 3rd to remove my cathetor from my chest. So I am stuck with it for another 2 weeks. It doesn't hurt but the covering makes me itch and I will be glad to get rid of it.

MaryLou, Karen, Kathy, Connie & Sylvia came over to visit last night. Karen & Kathy are visting from Washington DC for a few days.

Wednesday, July 12, 2006

My SCT has been put on hold....

until early fall at the earliest. My creatinine is still to high to consider proceeding with the transplant. My creatinine today was 1.8 which means it is very slowly coming down. I will see my oncologist from now on and not follow up with Karmanos until my kidneys are healthy again. I found out that I can extend my insurance until Nov 07 so I can wait until next year for my transplant- if I choose to have it. The doctor is concerned about whether my kidneys can tolerate the high dose melphalan. I sure do not want to cause so much damage that I would require diaylsis. I will need to really consider whether it is worth the risk. I will be talking to my oncolgist Dr. Goldman about this next week. At least I do not have to make the decison to finish my sct at this time. Thank God.
All prayers will be appreciated. : )

Wednesday, July 05, 2006





Our 4th of July Party....

was really nice this year. The weather was fantastic. It was nice and warm and no rain this year. The grandkids are all getting big and are so well behaved. The cotton candy machine is still a big hit with them. Sylvia is a great hostess and ends up doing so much work. Wish I could help her more. I am posting a few pictures of our fun day.