I saw Dr Goldman today. I have taken 6 cycles of velcade, cytoxan and 4mg of decadron every other day. I am non secretory except for serum free lights. In July prior to starting my kappa free lights was 233 as of 8/18/10 it is now 86.2 This is the lowest it has been in over 2 years. We tried velcade with doxil last year and it didn't work at all. We are all very pleased with the results and as always thank God for them.
The only side effect I have had is that the velcade and my blood sugar medication interact and I have had 3 episodes of low blood sugars. I am now off my amaryl and taking lantus insulin and glucaphage. Otherwise I have had no side effects at all. My pain is now limited to my L hip and some in my ribs. The morphine dose (30mg)he had given me was too high and I slept all the time. So I have been just taking my norco which only lasts 4 hours. Today I got a reduced dose of morphine (15 mg) and hopefully it will be just right. : )
Eve
About Me
- Eve
- I am 63 years old and was diagnosed with multiple myeloma on Feb 15,2005 at age 57. I was undergoing an autologous stem cell transplant.(SCT) I had my stem cells harvested in May 06 but due to complications I did not, nor do I plan to have the transplant. Added note: NEVER say NEVER; I am going to complete my sct starting Feb 15th 2011. I worked as a RN until going on disability in Dec. 04. I am the one with black top on. I am with my sisters Sylvia & MaryLou
5 comments:
Congratulations on your good report! This should be encouraging news to those who cannot have the SCT, if I gather correctly that this was your situation. We'll keep intending you continue to have good results from this combination!
Ahhh, the joy of a good myeloma test result.
Big smile and don't forget to have a little celebration.
Sid
Sandy,
I started the SCT procedure and harvested my cells. After the initial cytoxan infusion I became septic and then was treated on home vancomycin. The labs were not checked until after 4 vanco infusions at which time I was in acute renal failure and no longer a candidate for the SCT. At the time I was just glad to be alive and wanted nothing to do withm the SCT. My doctor has recently brought up the topic again but my platlets are too low (30) and I still am not sure if I would do it or not. I am pleased with my 5 1/2year survival and do not have any regrets.
Happy for you!
Only you know what is the best for you. love ya Sis
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