I am going to try and see if this works as a way of keeping everyone informed about my stem cell transplant. I am told I will have internet access when I enter the hospital. It will also give me a permament record for me to look back on in the future.
I had my cytoxan 1 week ago today. That went better than I expected. I felt a slight amount of nausea for 2 days. I only had one episode of vomiting phlegm, which went away immediately when I took my prn nausea med. Yesterday my wbc was 0.3 which is very low. I need to wear a mask if I go out in public. It feels odd going to the grocery store with a mask on but I am getting used to it. Just wait until I am bald. : )
I return to Karmanos tomorrow to have my labs redrawn and will let you know the results.
So far the only problem I have encountered is being sensitive to transparent dressing on my softcell catheter (see picture).
If you have any suggestions, feel free to let me know.
15 comments:
hi,I finelly made it
Hey Eve, great blog. Now that I know what a blog is haha.
Holding your hand in prayer with every new step. Shelley
Mom, I think this Blog is really great! I'm proud of you for the strength I see in you as you are going through this life changing experience... I'm praying for you without ceasing. Love you!
Your son,
Steve
Hi Evelyn,
I was able to get on your site. The blog is a nice way to keep everyone informed of your progress. Julie, Jim, Kim and I are praying for your healing.
Love, Sally
What a great idea! I can not belive I can do this and I didn't need your help??
My prayers are with you and your family. We all miss you! Will keep in touch. Have a beautiful Mother's Day.
Wendy
Hi Evelyn,
Keeping you in my prayers, so your healing manifests quickly.
I had no problems getting on the site. Wonderful idea. Now you can have in print, from all your family and friends, what a wonderful woman you are! :)
Mary C
Hello!! I knew growing up that you were a strong courageous lady and now your proving me right. I appreciate the updates on your progress. My thoughts and prayers are always with you.
Happy Mother's Day!!!
Love,
Nikki.S
Happy Mothers day .I know you will enjoy the day with your family also our Mom. I am praying all goes well for you, I need you around for a long time.Hee, Hee love ya bunches sis.
Hi Annt Evelyn,
I like this idea! Even Mom figured it out! Bruce and I wish you well with your treatment and hope you have a great Mother's Day!
Love Connie
I forgot to add my blog to the comment I just left.
http://vogtmmlist.blogspot.com/
In a few weeks, you will be fine. Take care.
Eric Vogt
Happy Mothers day to you sis. Hope they are treating you well in the hospital as you are so special.You sounded very good last night on the telephone. I am praying this antiobotic gets you on the right path very soon.Hope they brought you your computer into the hospital.Love ya bunches
Hi Aunt Evelyn,
Happy Mother's Day! I'm sorry that you are spending it in the hospital instead of enjoying the nice gloomy rainy day (week) outside!
I'm sure the sun will start shining once again when you come home!
Love, Debbie
P.S. This is the first blog I have ever written to.
Hi there ,so happy all your family came to see you today. Wow what a special mom and grandma you are to have them all come the same day. You must be so happy tonight and feel so blessed seeing all of your beautiful family. I had all of our kids and grandkids here also except for Karen. OH YES OUR Mom and sister also came to the girls graduation party, Kelli and Kaitie loved it. we had a wonderful time. enjoyed our talk with you on the phone. good luck and come hoome soon love ya bunches sis
Hi Evelyn,Yesterday in support of you my girls and grandkids made lavender bracelets. We made one for you and Julie also. Everytime we see it we can send you a little prayer. Sylvia will give you yours when she see's you.Mom has one they are all custom designed.hee,hee
I am so glad to read that you are going along the stem cell path and journaling as you go. I will be referring some of my patients to this site so they can see what it is like to travel the road. I hope that is OK.
Nurse Margaret
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